Angelman Syndrome Queensland: Home
Queensland Angelman Syndrome Assoc
Sprache: Deutsch
Dedicated to assisting individuals living with Angelman syndrome to realise their full potential and quality of life through funding research, education, and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.
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Every Person with Angelman Syndrome is Unique https://www.youtube.com/watch?v=U5J0kvFSTtA The Global Angelman Syndrome RegistryThe Global Angelman Syndrome Registry is the first online Patient Driven registry for Angelman Syndrome; putting power in the hands of those who care for someone with the Syndrome. This registry represents an important step towards better outcomes for individuals with Angelman Syndrome
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