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EB-CLINET eb-clinet.org
Our clinical network of EB centres and experts aims to improve medical care for people with EB and to accelerate the way to a cure through connecting health care professionals working with EB for the purpose of exchange of knowledge and experience.
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National Urea Cycle Disorders Foundation nucdf.org
NUCDF is the only nonprofit organization in the world solely dedicated to saving and improving the lives of children and adults from the catastrophic effects of urea cycle disorders.
iTOVi – Official Home of the iTOVi Health and Wellness Scanner itovi.com
Foundation For Angelman Syndrome Therapeutics (FAST) - Australia cureangelman.org.au
Dedicated to assisting individuals living with Angelman syndrome to realise their full potential and quality of life through funding research, education, and advocacy. Our focus is treatments that will improve the symptoms of Angelman syndrome and ultimately research that will provide a cure.
Senior Care, Hospice & Palliative Care | MJHS Health System mjhs.org
MJHS is one of the largest not-for-profit health systems in the region. Our range of health care services includes home care, hospice, and palliative care, rehab, and long-term care: We also offer health plans for Medicare and dual-eligible individuals.
The National Fragile X Foundation | Fragile X Syndrome fragilex.org
The NFXF serves all those living with Fragile X, including awareness, research, and community for individuals and families at all stages of life.
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