European Conference on Rare Diseases - ECRD2024
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.
Sprache: Englisch
The first international congress on rare and orphan diseases, a human platform for knowledge sharing
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CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
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Due to the spread of the omicron variant of COVID19, the symposium has to be postponed. Please save the new date: May 3 to 5, 2023 (venue: Tutzing, near Munich) Research on Rare Diseases is of critical relevance to 300 million people affected worldwide by more than 8.000 rare disease entities. Additionally, it may open…
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At HRA Pharma Rare Diseases, we are a team of passionate people, dedicated to rare and ultra-rare diseases such as Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Das Komplettpaket für Ihre Veranstaltung: Online-Anmeldung, Teilnehmerverwaltung, Auswertung, Startnummern, Transponder-Systeme zum Mieten.
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"OrphanAnesthesia" will prepare and publish concise recommendations for anesthesiologists as well as patients to help in planning and performing anesthesia in patients suffering from rare diseases. These recommendations will be peer reviewed readily accessible and reflect the best evidence available. Furthermore "Orphananesthesia" will provide a platform for discussion. "OrphanAnesthesia
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Working together, we can reimagine medicine to improve and extend people's lives.