ERN-EYE, a European Reference Network dedicated to rare eye diseases
ERN-EYE is a European Reference Network dedicated to rare eye diseases. We cover 24 out of 27 EU countries, to guarantee the best coverage of more than 900 Rare Eye Diseases (RED), which are the leading cause of visual impairment and blindness for children and young adults in Europe.
Sprache: Englisch
ERN eUROGEN is the European Reference Network (ERN) for rare urogenital diseases and complex conditions in both children and adults.
Coole Leute stellen Fotos und Videos online schreiben Ihren eigenen Blog und viel mehr.
Welcome on the homepage of RN-LUNG, a patient-centric network committed Europe-wide to reducing morbidity and mortality from rare lung diseases.
Endo ERN connects patients and healthcare providers across Europe, providing knowledge & resources for diagnosis and treatment of rare endocrine conditions.
ERKNet is an European Network of Healthcare Professionals specialized in rare kidney diseases. ERKReg, the Network's online patient registry, is a unique resource of real-world information on the demographics, management and outcomes of rare kidney diseases, facilitates the identification of patients for innovative research and allows monitoring of key performance and outcome indicators in the participating specialized healthcare units. ERKNet provides information and offers various education and training
ERN CRANIO is a European Reference Network for rare and/or complex craniofacial anomalies, and Ear, Nose, and Throat (ENT) disorders. Experts from hospitals in Europe are connected to this network. We cover a wide range of conditions, including craniosynostosis (isolated & syndromic), craniofacial anomalies (such as craniofacial microsomia, Treacher Collins, Pierre Robin Sequence), cleft lip and palate, orodental anomalies and ENT disorders.
Die Welt Erynnia ist eine Welt im Erwachen. Zwölftausend Jahre nach den Magierkriegen kehren die Magie und die Götter auf den Kontinent zurück und seine Bewohner werden von dem Zauber befreiht, der sie zu nicht endender Stagnation zwang. Erynnia ist eine Fantasy-Welt, enstanden aus einer Abneigung gegenüber Weltretter-Abenteuern und einer Liebe zu vielen unterschiedlichsten Geschichten, Gesellschaftsformen, Spielarten der Magie und Spezies, in der auch das nächste Gebirge oft nur als Legende existiert und
ERN-ITHACA is a European reference network for rare malformation syndromes and rare intellectual and neurodevelopmental disorders.
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
The European Society of Cardiology (ESC) is an independent, nonprofit organisation aiming to reduce the burden of cardiovascular disease.
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VASCERN, European Reference Network for Rare Multisystemic Vascular Diseases is a collaborative network of highly specialized medical experts dedicated to improving the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases. Explore our comprehensive resources, expert knowledge, and patient-centered initiatives to gain insights into these complex conditions.
euIRC - European IRC Network
leistet einen wichtigen Beitrag zu fairen und effizienten Asylverfahren, indem es allen am Verfahren beteiligten Parteien schnellen und einfachen Zugang zu qualitativ hochwertigen und aktuellen Herkunftsländerinformationen bietet.
The United Nations agency working to promote health, keep the world safe and serve the vulnerable.
Official website of the National Institutes of Health (NIH). NIH is one of the world's foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health and medical research. The NIH website offers health information for the public, scientists, researchers, medical professionals, patients, educators,
Bluthochdruck-Informationen für Betroffene und Ärzte auf der Homepage der Deutschen Hochdruckliga e.V. DHL®
Welcome to the European Society of Clinical Microbiology and Infectious Diseases
Bristol Myers Squibb is a global biopharmaceutical company committed to discovering, developing and delivering innovative medicines to patients with serious diseases.
Today on Medscape : Get the latest medical news, clinical trial coverage, drug updates, journal articles, CME activities & more on Medscape. A free resource for physicians.
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.
The first international congress on rare and orphan diseases, a human platform for knowledge sharing
An estimated two million Australians live with a rare disease. Approximately 80% of rare diseases are genetic disorders.
Senaste inom hälsa, biologi & virologi
Due to the spread of the omicron variant of COVID19, the symposium has to be postponed. Please save the new date: May 3 to 5, 2023 (venue: Tutzing, near Munich) Research on Rare Diseases is of critical relevance to 300 million people affected worldwide by more than 8.000 rare disease entities. Additionally, it may open…
At HRA Pharma Rare Diseases, we are a team of passionate people, dedicated to rare and ultra-rare diseases such as Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
Ultragenyx is focused on developing first-ever approved treatments for rare and ultrarare diseases and moving the rare disease community forward.
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.
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Individuals and institutions committed to improving healthcare services in rare hematological diseases