ERN-RND | European Reference Network on Rare Neurological Diseases for rare or low prevalence complex diseases
Sprache: Englisch
Welcome on the homepage of RN-LUNG, a patient-centric network committed Europe-wide to reducing morbidity and mortality from rare lung diseases.
Endo ERN connects patients and healthcare providers across Europe, providing knowledge & resources for diagnosis and treatment of rare endocrine conditions.
ERN-EYE is a European Reference Network dedicated to rare eye diseases. We cover 24 out of 27 EU countries, to guarantee the best coverage of more than 900 Rare Eye Diseases (RED), which are the leading cause of visual impairment and blindness for children and young adults in Europe.
ERN eUROGEN is the European Reference Network (ERN) for rare urogenital diseases and complex conditions in both children and adults.
CENTOGENE is a world leader in the field of genetic diagnostics for rare diseases dedicated to improve patients' lives every day. Order your genetic test!
Rare Diseases International is the global alliance of Persons Living with a Rare Disease and their families.
An estimated two million Australians live with a rare disease. Approximately 80% of rare diseases are genetic disorders.
The ECRD is recognised globally as the largest, patient-led rare disease policy event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape goal-driven rare disease policies and allow for important and innovative discussions on a national and an international level to take place.
Due to the spread of the omicron variant of COVID19, the symposium has to be postponed. Please save the new date: May 3 to 5, 2023 (venue: Tutzing, near Munich) Research on Rare Diseases is of critical relevance to 300 million people affected worldwide by more than 8.000 rare disease entities. Additionally, it may open…
The first international congress on rare and orphan diseases, a human platform for knowledge sharing
Senaste inom hälsa, biologi & virologi
Ultragenyx is focused on developing first-ever approved treatments for rare and ultrarare diseases and moving the rare disease community forward.
At HRA Pharma Rare Diseases, we are a team of passionate people, dedicated to rare and ultra-rare diseases such as Cushing's syndrome and Adrenocortical Carcinoma and providing important medicines: Metopirone (Metyrapone), Ketoconazole HRA, Lysodren (Mitotane).
The European Society of Cardiology (ESC) is an independent, nonprofit organisation aiming to reduce the burden of cardiovascular disease.
The Lyme Action Network is a 501(c)(3) not-for-profit organization working to advance information and understanding about tick borne diseases. Click here to browse information, public support programs, news and helpful resources on Lyme disease and other tick-borne diseases.
Biotec App
Our mission is to promote neurological excellence in Europe and across the world, leading to better patient care and outcomes. We unite 47 national societies and represent more than 45, 000 neurologists to achieve this goal.
An international open forum for bringing together experts in hematology and infectious diseases from Mediterranean area and all around the world to investigate relationship between haematological and infectious diseases
Harmony Biosciences is dedicated to developing & commercializing innovative therapies and novel medications for patients living with rare neurological diseases.
Ketogenic Diet - Future Prevention and Treatment of Non-Communicativ Diseases...
News Blog of the European Academy of Neurology